Grace in Reflection - 31 Days of Redeeming Loss


Sticking Points - October 10, 2014

Yesterday I really wrestled with what was important.  Today, too.  Every day is a juggling game.  It’s always a juggling game in this house.  How early to rise, do I dare a moment in quiet before the earth shatters downstairs or someone forgets to sort laundry or take out the dog?  What do I expose my kids to?  Do we wrestle with headlines or do we just stay put and wrestle with one another?  How do we sort all the sticky junk that just seems to ooze under the door and seep into our lives, even if we try to stay in bed, hide under the covers, shut it out.


I awoke to a blood moon a few days ago.  Some awoke intentionally.  I awoke because a set of boots clomped down the hall outside my bedroom right before the early alarm went off.  Toddler stirred, hubby got up and showered, preparing to stand at the end of the driveway past the reaching pines and witness a rare event.  I stayed in bed.  I didn’t really sleep, not much.  Maybe it was hiding.  The blood moon, its history, its connections, just reminded me so much of how dripping red our hands really are.  Did I want to get up and see, see what I’ve witnessed before? Did I want to bring to the table the current, the tragedy, the burdens beyond my personal ones that are so hard-hitting at the moment?

Abi said that she was glad we didn’t have news running on the TV 24/7 at our house, glad that the fear factor was not living at our breakfast table.  Nice to be a child when the monsters are still locked behind the bedroom door and all you have to do is shut it and turn on the lights and all’s well with the world.  It’s not that they don’t know.  They do.  My kids can describe world events with the best.  They just don’t have so many visuals to go with it.  Tony and I choose that.  They know why Isaac and Ishmael are still batting in the Gaza strip.  They, like much of humanity, can’t wrap their brains around Islamic violence and even as adults we wonder why people can’t just be nice on the playground and not bullies.  They are familiar the talking heads, leaders full of vitriol, lies, propaganda, and sparse, occasional truth.  They see the roll of the impending plague.

And then as I worked while sitting on the sofa, sounded out words while signing another up for the SAT, it came bounding across my feed in all its ugliness and deep sorrow.  As if all the burying, hiding under the covers that we’ve done is not enough.  I have really been at the end of my tolerance with a lot of issues, stupid insincerities that really get my ire up, blanket statements spewed as news, opinion, even assumed truth.  And this one story struck, snuck in my feed and hit hard, hard enough that I wanted to duck that hard ball, hide back under my blankets in my comfort and not expose myself to the haunting moon. 

I’ll put the link to the story at the end, but suffice to say, Brittany is 29, dying of brain cancer, choosing to die, assisted, at her own hand.  And the media, in full toxic pomp and circumstance, trumpeted “choice” as truth yet again. 

I empathize.  I get it.  Only someone who has sat in her same shoes could truly tiptoe with her at every single level, but I get it.  Here’s why:


 I’m not sure Tony and I have published this picture before.  I know we initially held it back to not mortify our youngest children, but perhaps now it’s a launching pad, because you see, we really don’t have a life or death choice.  As much as I believe that there is a personal God who is both in charge and orchestrates for our good in an ever-compassionate manner, even if I did not believe that, I would know that I don’t own it all.  It’s not just about me.  It’s not in my control no matter how much I like to think it is.  We can preach that we are the world and we are a village, but when it comes to death and choice, we preach to our end that it belongs to us, the individual.  Not so.  It doesn’t.  Death is not ours and suicide is selfish, the act of a hurting person who fails to take the time to see beyond herself.  Each time we end life of our choice, convenient or no, we snatch joy.

There’s another story circulating, maybe not so mainstream, about a boy named Shane.  Shane was born anencephalic, a condition where parts of the brain are missing, resulting in a very momentary, short gasp of life.  Shane’s parents, knowing that they had limited time with him after birth, created a bucket list of things to do with Shane while he was still in utero and celebrated every precious milestone. 

We don’t own it.  It’s most difficult to believe when your baby Shane is on the altar, when you are wasting away moment by painful moment with a dim prognosis, when you have few answers. But if we can’t…if we can’t make baby steps toward hope and faith in the dark, when will we? What is the point of our tossing around such words?  Is there value in suffering if we toss in the towel and give up hope of light at the end of tunnel, anywhere in the tunnel?  I realize that it’s often used in a different context, but what about the old adage, “no pain, no gain”? 

I’ve cradled a baby like Shane in my two hands.  I can only tell you that my momentary glimpse of that sweet child’s face, fingers, and toes had not a millisecond of room for pain and all the joy of the hand of the Creator.  My own flesh and blood has been there on the altar (see pic above) and though as a parent, every ounce of you wants to snatch your son back, to spare your child pain, I also have sat in that miserably uncomfortable ICU room chair, leaning against the wall for days, with the very clear understanding that I was so totally and absolutely not in charge of the outcome.  And there, not knowing the end game, the worst and most shortsighted decision would have been to toss in the towel, call the game, walk out.

I’m not patting my own back, but brave sticks by.  It may run to the bathroom for a few minutes’ breather, but it sticks.  Brave is the single parent on the oncology unit, the father whose spouse didn’t stick when the daughter was diagnosed with a terminal disease.  Brave is when the child sticks with treatment, day after day, month after month, not for herself, but because to roll over and die and not give it a fair shot or to crawl in a pity hole would kill her parents.  Brave, in the depths of chemo, built a gun table last year just to lay prone or lean his elbow up to practice his shooting when he got to weak, because you can be too prepared and you might as well enjoy each moment you have.  Brave goes to college as adult and finishes in spite of a history of disease that can kill and a philandering spouse because your kids need to eat and you want to eat many more meals with them. 

I know the moon’s red.  I know firsthand that cancer simply sucks and I know I tell my kids to choose a more appropriate word, but there’s not one. I know I awake each day to grumpy people who are late for class, to a toddler who wants me now, to two cars that seem to always take expensive turns in the shop, to the reality that we are still going back and forth with Asa, not so often, but still, for a long time still, back to the world of oncology, to a house that is buried from the past few years of our turmoil, to the fact that cancer could ultimately cost my child his hearing even though he survived chemo.  But it’s okay.  It’s got to be.  It’s okay to be, because the story is collective and it’s not mine.  And the reality that I wish the Brittany’s understood, that it can, no matter how ugly, even with a tragic ending, be called good.

Brittany’s story


Baby Shane’s story




Battle complete.  Well done... - October 7, 2014

Many of you who have been along for Asa’s big, long journey, know that there are a lot of sweet people, docs, nurses, volunteers, patients, and families that we have gotten to know along the way.  You just can’t help it.   We are very sad to report that our precious friend, sweet saint, Caroline, the one that we probably reported on most, requested prayer for most, lost her battle with leukemia yesterday.  We celebrate in ways as she is free, free from the pain and torturous treatments, the ups and downs of chemo and pits of side-effects, finished forever with the days of trying to survive being a teen and living like a bubble kid, day after day of needing transfusions.  We celebrate that she was born again and is with her Savior, the Lord Jesus Christ and enjoying every minute of a new and perfect body and all the freedom and joy in His presence.  How exciting!  We sorrow with her family who loved and encouraged her (and us!) so and fought so hard.  Caroline’s presence influenced so deeply all of those who met her.  She was a funny and delightful kid who just gleamed a holy content whenever you saw her, pain or not. 

Clearly, we ask for prayer for Caroline’s family.  I know families with cancer grieve as they go, but when cancer has been your life, when all is said and done, no matter the outcome, you are sort of left not knowing what to do.  Please pray for Caroline’s family.  I know they want her memorials to reflect Jesus.  Pray for her siblings as they are released to the next thing in their lives.  Pray for her parents, that they adjust back to civilian life well now that the battle is done.  It’s hard, so hard.  Pray long term.  It’s a rest of the life, until eternity adjustment.

This past weekend I went to my son’s college choir concert.  It was a hymn concert in 4-part+ harmony, featuring many old classics and their histories, standing room only with overflow out of the concert hall.  I was struck by the truth of it all.  I have a partiality to old doctrinal hymns, even though I learned that some in particular were scandalously modern when they were written.  I think they bleed timeless into history though, even the boat-rocking ones, because they are just so chuck full of restated Scripture.  Mid-concert, the choir sang Spafford’s “It Is Well with my Soul.”  As I stood in the back, just outside the door of the hall, I thought of Caroline. 

Though Satan should buffet, though trials should come,

Let this blest assurance control,

That Christ hath regarded my helpless estate,

And hath shed His own blood for my soul.

I knew it was close.  The end.  The new beginning.  Even with good reports, we all knew.  You are weighing in one hand the need for the unheard of miracle, the Master’s touch and in the other, the truth of Psalm 116:15, “Precious in the sight of the Lord is the death of his saints.”   You don’t really know how the scales will weigh.  You are not out of time, but stuck in the dead present, thinking you know the best solution, and, quite simply, we don’t.

We only get the last two lines.  We have been regarded by the Maker of heaven and earth, the Savior of the world.  That’s all we’ve got.  All anybody has.  All anyone can rejoice in, that we have been regarded and bought with His precious blood.

So, for today, we sorrow, but we can also easily and joyfully state that it is well with Caroline and for that, we are truly grateful and even excited.  Praise the Lord, Oh my soul!

If you are not familiar with “It is Well with my Soul,” the full lyrics are here:



And better yet, if you don’t know they history behind this hymn, check it out here.  What a story!:



Falling Flat - October 6, 2014


I skipped it.  Somehow, I just skipped it.  I don’t think it was intentional or maybe it was in my pie-in-the-sky first world growing up and moving into middle class wonderland adulthood.  I really missed so much of what the Scripture says about suffering, the deeply dug passages that offer the stark reality that we will land face first in the dirt. 

There was a funny last week.  I threw it on Facebook, because that’s what mom’s do.  If you share social media with me, forgive the overkill.  Between Sunday school and Bible time at home, there was some overlap, we had a week full of the escapades of Abraham.  Repetition is just fine.  We moved on one morning to the story of Isaac and I was reviewing with my youngest set of kids the biblical lineage of these stories, just so they would connect the dots hopefully, perhaps grasp the root of world politics eventually.  No grand expectations.  We have been using this old Bible storybook that was on the bookshelf for a change of pace.  I can’t say I care for it, mainly because its verbiage is often too lofty or obscure for littler minds and I have to translate.  Not grade level for sure.  So, as I began the story of Isaac, I asked broadly, grasping for snippets of retention, “Do you remember what happened with Abraham?”  Without time for a verbal pause, my daughter pipes up, “He fell.”  And when we all looked at her blankly, she says much louder, “He fell on his face.”  And then it hit me.  Face palm.  Between Sunday school and that out of date tome, she took it all literally and remembered what she deemed the most violent part, which in itself is comical, considering lots of Bible stories trend toward too much violence for toddlers.  Abraham fell on his face before God.  Bloodied his nose, skinned his knees, needed a Mickey Mouse Band-Aid, fell. 

We laugh, but neither you nor I really like that prostrate place, our nose shoved deep in the grains of sand.  But, we really don’t like it if it was a fall not our choice.  We don’t like it if it does costs us calloused knees and sidewalk burned palms. 

Every day we experience something of the death of Jesus, so that we may also know the power of the life of Jesus in these bodies of ours.  – 2 Corinthians 4:10 (Phillips)


This struck me hard.  We live for the so that moments, but we forget the first half.  Every day.  Every day death.  Every day suffering.  Who signed up for that?  Were we sold this?  I don’t say that bitterly, but out of a history of just not fully understanding the big picture, even though it is painted in pure photo-realism for all to read all over the pages.

It is further mystery that bloodied nose and scraped knees, poverty, loss, sorrow, wrong-doing, the dregs of the worst of the worst, is knitted good.  In this verse, it is “so that power.”  What does the word power have to do with suffering? Living your life in a cancer ward?  Burying family?  Twice? Watching friends slip slowly away in deep physical pain?

But it’s true, this Kingdom Upside Down.  You begin to see that catawampus is really right side up, that broken brings glimmers of good and great, the right side of great, the unselfish side.  Not easy.  A lot of face in the dust time.  A lot of wondering how glory rides on the wings of brokenness.   But, it does and somehow the Light cuts through the sorrow more strongly.



His eye is on the...dog? - October 5, 2014

Yesterday was a day where I got to think a lot.  In reality, that means I had to put my chauffeur cap on and Asa refrained from screaming in the car while I dropped off and picked up non-driving minors in my household.  I get to think a lot, because most of my days fit that description.

And as I sat and sucked my coffee and wondered why traffic was so bad and muttered about how I got turned around taking the back way, I got to thinking about the friends hanging on by a shoestring by God’s grace, the gut-wrenching suffering we are so exposed to second hand, the horrid puking and barfing and lack of appetite that goes with chemo and why on earth that is so necessary to kill this nasty disease, if it does.  That wandered to thoughts of decisions about college yet again, a process that happens every few years around here, a journey that is always entertaining at best, trying to make good decisions and waiting for God to show up with the financial miracle, and spending months playing through the mind-game scenarios in anticipation of how it will really play out.  All this mental meanderings in sharp contrast to my fuzz-headed contented toddler who had wolfed down his yogurt and French toast and was peacefully taking a morning snooze in his car seat.  My mind drifted a bit too far and I missed a turn somewhere in a wretched maze of a rural neighborhood and had to stop, look at my GPS on my phone and figure out where in the world I was and find the nearest exit.

It was a God moment.  I pulled to that exit and got my bearings, realizing that I needed to turn right into a detoured mess of traffic and in the waiting and waiting and waiting at the stop sign, I spotted a dog.  A stupid dog.  She was loping aimlessly through a field having the time of her life, precariously close to the edge of a major four-lane road, clueless that she was about to play a game of chicken and lose.  A nice man in a college shirt, clearly headed to watch the game as was everyone else on the road not headed to the birthday party, stopped and tried to call her to no avail.  She came close, laughed at him, and tore off.  He gave up, kick-off calling.  I got a break in the traffic and crossed to the other side to a side street, opened my side door, called the dog, and she walked right up to me.  Lacey the Beagle, wearing an ineffective electric collar, lumbered into my van and wagged her tail while I read her tag and called her mommy.  I have NO idea what I was going to do with her if she hadn’t had a family or a number.  I hadn’t thought that far.  I guess she was going to go to a birthday party with me and run errands.

But Lacey’s mommy was home.  She called me right back and she lived about a mile away. I pulled into her drive and was greeted by a teen boy and young girl shaking their heads at Lacey.   And it struck me, all the silliness of it, yet the seriousness of it.  We tend to elevate the importance of fluffy companions sometimes, but God cared enough about that sweet family to rescue the most ADD, wandering, flighty, stupid member of it and scoop her up in warm rescuing arms and deliver her right to their front door. 

How could he do any less for all those people, all those scenarios I was fretting over.  I was worrying about loss that hadn’t happened, but our hairs are numbered, hair or no hair.  It’s easy to number zero.  God cares for the sparrows.  Why would I wallow in despair so over those feeling so wretchedly ill.  Yes, we should share burdens, but we should also push ahead even painfully with the pretense that our backs are covered.  We know who wins.  We just don’t know which side of eternity.  And, lest we forget, even in our ditsy lostness, wandering in the middle of the traffic-ridden highway, we are loved, cared for, sought after, known.
  
To Leech Or Not To Leech? - October 4, 2014

This post is probably taboo, TMI, for some folks.  If you are one of those people, skip this.  And, besides that, what on earth does nursing a toddler have to do with 31 day writing theme of suffering and redeeming loss?  Anybody who’s nursed a toddler knows the answer to that one.  Everything.

Perhaps you know the lovely cliché stolen from the biblical story of Hannah and Samuel?  “For this child I prayed.” Well, as much as Asa was more of an Abraham and Sarah laughing story, I didn’t pray for the child to be here, but that the child, once he was here, would nurse.  And now, that’s sort of a joke. 

Asa slid out, lay his slimy head on my chest and latched and nursed like a pro.  Problem was, after a week or so, we realized that he wasn’t getting anything.  Everything got blamed but the real problem.  Too old?  Plumbing just doesn’t work anymore?  Made me feel royally lovely.  I had already felt like I failed with one child, a ridiculous thing to feel considering that I had successfully nursed 7 children at that point and especially considering that the failure had to do with my son’s mouth formation.  But mommy hormones and illogic just yelled, “You failed!”  So, Asa, like his brother, was headed downhill with my emotions, until, staring sleep-deprived at his pitiful attempts one day, I realized that his tongue was not involved in the process as it should be.  A trip to the lactation consultant later, (well worth the $$ by the way, the cost of 2-3 cans of formula) my suspicions were confirmed, Asa was tongue-tied.  Another trip to the pediatrician, a few minutes of mindless fussing, and that problem was solved.  Asa became the suckling champ.

It’s a good thing, because when cancer struck, nursing became essential, this blessed curse that drove me bananas.  When Asa was in critical condition, when chemo killed his appetite, all he would consume was breast milk.  Everything else was a no go.  No food, no formula, no bottle, no cup.  Occasionally coffee.  I had never ever fought so hard to nurse a child.  Nursing allowed him to go home and spend very minimal time with a feeding tube up his nose, something that is so totally practical with a toddler anyhow.  Not.  Nursing gave him antibodies that he would not have gotten elsewhere, antibodies to fight adenovirus.  So, no matter how much pumping time, how much biting, fussing, waking up at night, we fought on, both Asa and I.

It paid off.  I know my prayer was answered, certainly not the way I ever imagined, but God answered and Asa survived.

So we enter the recovery and rebuild season now and I’m wondering about the former endurance and suffering because nursing is now a torturous comedy.  An absolutely distracted toddler with 12+ grinding teeth who thinks Mom is breakfast, second breakfast, lunch, afternoon snack, dinner, and dessert.  Of course, so is whatever the offering on the high chair tray, milk, formula, half and half, goldfish, crackers, grapes, yogurt, and anything he can swipe from other warm bodies in the house.  It just all needs to be topped off with the crème de la crème – Mom.  I might as well just moo like a farm animal for all to hear.



 So, numerous times a day the seemingly ravenous climbs in my lap, flips over, squirms and giggles, kicks the dog on purpose, sings and hums, hangs upside down and looks at everything else going on in the room, all while trying to eat, popping on and off, scraping teeth every thirty seconds or less, talking to his sister.  Every nurser has a hand fetish, too.  Some kids twirl hair, some pat, some squish like a puppy on its momma, some have to have a blanket.  Asa has his own and I will refrain from mentioning it short of it being yet another inconvenience.  If I ignore the pleas, he sits at my feet and melts down for mommy time.

I think I need to decide how much more suffering we can endure.  We are in the clear medically speaking, so moving on past being a permanent attachment to mom is a real consideration. Others were weaned when they could stand up and nurse or verbally would come up and ask, “Muh I peas ha a ______?”  One, who will remain nameless, because he’s now an adult, got cut off when he wanted to stand in my lap, eat, and watch Sesame Street, all at once.  I think Asa has now redeemed about as much he can out of this symbiotic relationship, because it’s really no longer symbiotic as I’m on the losing end, feeling a bit like a mother dog stretched out with that sunk-eye look of exhaustion.

Back in Hair - October 3, 2014

We’re back in hair around here again.  It’s part of recovery mode, the return to whatever normal might be for one’s pate. Unless you are blessed with the male pattern baldness gene, I’m not sure most of us think so much about hair or the lack thereof, until cancer, and then hair is a hot commodity. 

If you live in the land of normal, it’s so odd to be hairless unless you are a Kojak type or one of those cool young receding pastors who shaves his head because it’s just trendy.  Don’t venture to the grocery store with a bald kid.  You’ll discover just how “cute” it is. But in a ward laced with leukemia and solid tumors, hairlessness is the norm and honestly, gets really sort of funny at times. 

I know there are lots of laments when it falls out, especially for girls.  It’s really mortifying.  When Asa’s fell out, it was as they predicted.  We just found strands on his pillow one morning.  Asa was odd in that he didn’t lose it all at once.  It took a while, like several chemos a while, so he sported this very sparse comb-over look for a long time.  Lost eyebrows and eyelashes, but still the strands lingered.  I suppose we could have cut it where it was a bit more uniform, but when you are going through chemo torture, you grasp at every strand of normal childhood you can find and hair was just one of those things.  And, besides, no one wants his kid’s first haircut to be leftover hair that the chemo didn’t root zap.   We just wanted to hold on for dear life to that little glimpse of red.

But it is comical.  It’s never a true buzz cut look when the hair comes back from damaged roots.  I’ve seen mothers shave their heads in sympathy with their daughter, but apart from looking a bit masculine, it just looks military.  But a chemo kid is different.  It’s like the head can’t seem to decide what to do or which way to shoot out hair.  It’s as if the hair is reluctant, wondering if it’s going to get zapped again, afraid to face the reality as much as the patient.  Nurses say lots of kids come back blonde and curly because chemo affects the shape of the hair follicles, but I’ve seen just as many wiry-headed, and sparse wiry heads full of dark dark hair. 

And it’s baldness embraced, sometimes with a hat, but most often with a go with it attitude, an obnoxious over-the-top bow, a superhero cape, a bandana all its own, sort of like Duck Dynasty’s Willie, a signature style.  Asa had a ninja turtle hat and a SuperAsa cape.  You have to grab, hug, and hold on for dear life to the non-normal, the funny little losses that become signature joys.  I can still remember spying four precious very stages of balding teen girly girls giggling away playing board games, joy abounding.

Asa is moving on.  I think we are, too, as much as that ever will happen, because you leave pieces of you behind and take other new ones with you.  Cancer grasps at you always and like forever altered hair follicles, doesn’t leave you the same. We are so embracing of Asa’s new fuzzy peach look, still wondering if the down up top is still red or if it’s just now mousy brown.  It’s not blonde exactly as predicted, though his eyelashes are a leftover mix of remaining dark and new blonde.  It’s a fun waiting game.  Will he be curly?  Will he be a ginger to match his recessive blue eyes?  We don’t know.  We’re still waiting for the first haircut.



Eeyore's Options - October 2, 2014

Eeyore.  I’ve always been a bit that way.  Too busy observing the glass, wondering when the water levels will start climbing again.  Maybe it’s human nature. 

When I teach art, I tell my students that the primary thing I’m doing the first year is to teach my students to see.  Forget the results.  Just see.  And then use your hands and arms and whole body, whole being to move in the direction of what they see.  We don’t even delve into color at first, certainly not Technicolor.  We’re just looking, catching the Designer and His design somewhere between our eyes and our paper.

I need to see.  I think I do, but it’s just so darned easy to see what’s dead in front of us.  The fact that I made an espresso on a machine this morning that no longer has a glass carafe, but a lousy measuring cup stuck under as a sub, a machine that no longer has a nice silver frothing pitcher because someone, someone called a toddler or negligent other took off with it, never to be found again.  Instead, I use a coffee cup about the same size.  And I’m too lazy, too cheap, too distracted to order replacements from Amazon.  I am just not going to mention the fact that I found the previous day’s coffee cup aka frothing pitcher replacement shoved back behind the espresso machine and certainly not sent through the dishwasher, much less seen a sink.  And the potato peeler, though unrelated, it’s gone AWOL.  Again.  Third time.



I don’t want to see this junk, but it’s smack in front of my face.  Daily.  And before I’ve gotten that cup o’ Joe down my trap, nonetheless.  It’s arresting. Very irritating.  Brings out the worst in me, like caffeine-withdrawal grumpy psycho worst.  And I’ve got to choose.  Eeyore or no Eeyore? Coffee cup empty or full?  I must choose.  Will I be a happy-go-lucky, albeit delusional or clueless Pooh or wallow in Eeyore’s coffee dregs?

I have to see, practicing my seeing movements, drawing a new picture.  It doesn’t come by osmosis, just by missed keys in the song, missed and repainted, repentant brushstrokes.  Suffering has taken me there, to forced practice.  My mom used to tie me to the piano bench growing up, not literally, but it sure seemed that way.  Total and complete drudgery.  I wish I could say it made me a good musician.  It didn’t.  It did perhaps teach practiced persistence and that no matter how much we try, we again fail.  That’s an Eeyore statement, but it’s not.  Eeyore can be scraped up off the concrete, drug by the collar to standing to try again.  Every step is move forward to thanksgiving, a stroke to a new start.

Redemption now?  Redemption later? - October 1, 2014

My box has been filled to overflowing.  I like it.  I like the warm fuzzies.  Fat babies, soft newborn skin new on mommy’s chest.  Long awaited.  Prayed for. Surprised with.  Joyed over.  And the pics of grandbabies, apologies for the obnoxiousness of dumped whole albums on social media for the world to see, but none of us perceive joy as obnoxious.  We just lament that we are not there to squeeze the warm flesh ourselves, share a bit in a grandparent’s pride.

But there’s other stuff there, hiding in my feed, lingering in my email.  A different joy.  I’ve shared some of their names in the past, but I can’t capture them with a lens like I can Asa.  Sometimes hospital protocol, privacy acts are so restrictive that you and I can’t even venture into their world unless they venture out.  But they followed us home.  Not to be insulting, but it’s sort of like a friendly mutt with mange that loves so unconditionally, that you attach to with a first love such that you can’t forget them, leave them out of your story.  So you make more space.  You think you don’t have more space because you’ve already lived and written three lifetimes of chapters of your own saga, but you do, you shove over and make room for more.

We don’t know what to do with them.  We do.  We pray.  We wake up at night.  We sorrow, we wonder about their eternities, we wonder about their now.  We sit here in healing and they still sit in the dust, some surrounded by friends, some not, wondering when or if theirs is coming.  Is redemption now or later or for some, ever? But you feel every ounce of their sorrow, every ounce of their momentary joys, want to know their winding story.

I want to introduce them to you.  A few I have.  A few I can.  So many remain private, some by choice.  Suffering can be so so private.  I want to show you their funny hair, the face of their spouses who are run ragged, the wonderings of the mothers who waffle between the hope of a cure and the hope of eternity.

Many tell me that they couldn’t ever work the wards where we’ve been.  I couldn’t.  I had to be there.  But, “had to” has gradually become, I choose to.  Part of it is because you just can’t choose not to, but part of it is a selfish unwillingness to run from the flickering joy that rides alongside suffering.  No one asks for pain, no one begs for the fellowship of suffering.  Ever.  But in some weird and holy inexplicable way, it’s irresistible, like the sad dog illustration, joy unhinged.


So, no pics today.  How can you capture this?  It’s only in the eyes and in the heart and it’s so personal that I’m not sure it can be stolen that way. I don’t know how to give you a diatribe of thankfulness here, other than this is something different to learn to be thankful for, the privilege of knowing others.  But, I am giving you a list of names.  There are SOOOO many more.  I hate to list them because I might, am positively, leaving off some.  And no list shows the trickle down to the aching parents, the siblings, the grandparents, the friends, the nurses, the doctors, those who feel every ounce of suffering alongside.  So, for Caroline, Kevin, Brendan, William, Mark, Jake, Tacey, please pray.  Pray desperately and continually. Some are dying, some are living, and I suppose it doesn’t matter which way they seem to be headed because none of us know our day or hour, how the game plays out individually, we can only strangely rejoice in the One who redeems now or later.

No comments :

Post a Comment