To clinic. Forever. And ever. And ever. - July 24, 2014

Falling in bed and done, so done today.  It was entertaining today, not quite so much as the day the sunroof got stuck open, but entertaining.  Should have known it when it broke into a total drenching, bucket-emptying downpour as we were walking out the front door. We started wet in spite of umbrellas and raincoats. Then we got to clinic and saw our docs and the day moved to the speed of molasses thereafter.  If this was paid healthcare, government-directed is unfathomable.  We waited four hours I think for them to drag someone off the street and squeeze them drop by drop to get blood.  I shouldn't be so sacrilegious about blood graciously donated, I'm sure, but sometimes it's very baffling why we wait so long.  Then it took about 3 hours for the transfusion itself. We were in clinic for 8 full hours today, most of which was spent tortured in front of a tv tuned to the nick channel.  So overjoyed to come home and fall in bed, but Asa is totally wired and full of lots of blood and won't go to sleep.

We also got chemo today, but that was a minor affair comparatively.  Asa's platelets are a bit low and we would like prayer for that.  They didn't give him any, but we are trying to keep a toddler from constantly falling and it's a challenge and he bruises easily.  His other blood counts are very low right now, too, so we are on tight lockdown, which is no fun.  We were hoping they were headed up, but not so yet.  Hopefully they will be up enough for inpatient chemo next week, our final inpatient chemo. Please pray for Asa's hearing, too.  We have one more round of the culprit chemo next week before hearing tests again.  They have arranged for a more thorough testing of what's really going on.  Asa is talking a bit, so we know he's hearing for now, grasping a few new words, but upper ranges go first.

Thanks today for finally escaping the nut house, for kind people who entertain kids at TCH, so their parents retain sanity. Thankful for good docs and nurses who know our kid.  I don't know how they do what they do day in day out.  Happy that Asa is content with goldfish and cups of ice.