Wednesday, September 24, 2014

To clinic. To clinic. Tomorrow. Again. - Sept 24, 2014

Tomorrow is clinic day again, bright and early at TCH.  Asa has been doing well, literally giving us a run for the money.  He's up off all fours, breaking loose for the kitchen cabinets or the dog's water, the stairs, or anything else that is a no-no.  I tried to capture a pic of his headful of peach fuzz to no avail.  Could not get the camera to focus on the teeny hairs.  He has mixed colored eyelashes, some of which fell out and are coming back, and some of which held on for dear life.  The rest of us are surviving, trying to do the normal school year routine after months of non-normalcy, digging out of piles, physical, mental, emotional, that went to the wayside and got way to deep.  

If you didn't get a chance to read the update from a few weeks ago, the collaborative report from surgeons and oncology docs, go back a few listings and take a look.  Our current status is simply watchful, as I think they anticipated it would be for the next year.  Tomorrow they will do bloodwork and look primarily at Asa's AFP, alpha feta protein, levels, the blood marker for this cancer.  The last count about a month ago was 20.  This was up from the last count of 13, which was one point above normal.  The desire is obviously for it to be steadily dropping.  The hope is that tomorrow that it would be down again and at worst, the same.  The plan is for another MRI as well before the end of the year.  We are praying that hopefully Asa's port with come out as well before the end of the year.

We would obviously ask that you be in prayer for the same old things, that Asa continue to improve and that we could be at home, well away from the crazy world we lived in for so long.  Pray for us as we drive in and back tomorrow, that it be uneventful.  Pray for wisdom for the docs as we go through bloodwork, results and such.  I'm not sure when we will have a definitive answer on the counts.  Last time it was a day or two.  I'm sure the docs will be pleased with Asa's weight, as he has been packing on the pounds, making up for lost time.  Pray for us as we go back into the world of clinic, that God would use us to talk to and work with families there.  Pray for our crowd that will stay home tomorrow.  We've been having car issues, so we are short a car, so there's a bit more carpooling going on than normal.  College, work for 4 different folks at 4 different places, and clinic, all make for a dicey day.

Thanks today and this week for a bit of time to get this blog stuff up and running, a solution that we had been talking about, but not had time to implement.  Grateful that Asa is eating well, appears to be on yet another growth spurt.  Thankful to have my van back and glad we finally bit the bullet and bought another vehicle a few months ago.  Happy to have been home for a month, sleeping in our own beds, eating our own food, a nice month, away from life at clinic and TCH.  I love and appreciate those docs, but sure not heartbroken that we haven't had to see them. Thankful for kids who help out around here so much and cover my tail so I can recover.


No comments :

Post a Comment